Discussion

The Infectious Diseases Data Observatory (IDDO) is building a data sharing and reuse platform for clinical data on the treatment of schistosomiasis and soil-transmitted helminthiases (STHs). The platform is designed as a resource to facilitate research that will enhance the treatment of schistosomiasis and STHs and will thus ultimately enhance prospects for controlling and eliminating these neglected tropical diseases. The IDDO principles of collaboration, inclusivity and transparency to achieve equitable data sharing and reuse are embodied in our process for developing a research agenda. Our broad consultative approach aims to ensure that we reach a set of pertinent research questions and themes that reflect the prevailing—but not immutable—consensus of the scientific community. The approach also serves to promote early engagement and participation, fostering the platform as a shared scientific resource. This talk will outline our process for developing a schistosomiasis and STHs research agenda and highlight some disease-specific research questions that are best addressed—or can only be addressed—by actively embracing data sharing and reuse.